I wish I could tend and play with them like I did the first 3. Tired/Fatigue are my life!!If you ask 'how are you feeling or doing', that's what you'll hear. I watch families going and doing fun activities, and just that makes me tired. Kim is very patient, he still goes hiking, something I never did with him anyway, but movies, dinner, anything is just hard. I am still working, I had to take a day off because of a leg pain that made it hard to walk, and it's not good staying home and doing nothing, good thing there was a Law and Order Marathon.
We celebrated Charlotte's #2 birthday. Her mom and dad had a fun family party for her and all the kids had a fun time. She has gotten so big and fun, loves water and being outside. She is a sweet big sister, and sings and dances.
I really really need to keep a daily diary of all the things I've been through but I just don't. But a few things are I've received a blood transfusion a couple of times, my count just gets too low. I received a shot call Nupogen because my WBC was low too. A lovely Colonoscopy and upper GI scope, all showed I was fine, no ulcer just irritation in my stomach.
On Monday the 22nd the results came back that it is my Myeloma, but it has basically gone a muck. I had a PET scan that showed more areas of concern. My right breast, my jaw, I've got painful ribs again that could be fx. but they are livable. A few other spots showed up, but they can just be my regular MM areas, not giving me any problems.
So as it stands, My Dr. is going to meet with his 3 partners, get their opinion, and talk with my Dr. at LDS and see what direction they want to take. Again a few options were mentioned, but again #3 chemo didn't work and my body took advantage of that and went a little crazy.
I am grateful I can keep working, I grateful for a husband who can just hug me , hold my hand and admit he has nothing more to give at times. He lets me cry as needed (which is all the time), he fixes a lot of meals and will do take out if that's my craving!! He helps with the laundry and anything else that needs to be done. I love him more than words can tell.
I have the best kids in the world too. They call, they will help if I need them, they tell me all the time they love me, they all get along so well that just that warms my heart. I love them so much.
I have friends both a work and home that care about me and want to help, (I really don't need anything), I have received sweet little gifts that are reminders about how much they care. I need to be more Christ-like. like they are, and give to those that are in need, even silly little "I'm thinking of you messages".
And last but not least, our families who care and call and want up-dates, ( sorry I didn't tell anyone the latest) and too what to help where help is needed, but really we do just fine at home, but hearing from them is heart warming and makes me so happy that we have stayed close and care and love one another.
I tell Kim all the time, "I'm tired of this, I can't do this anymore, why is this so complicated, it was supposed to be a fairly easy treatable cancer" we were told, But I will keep fighting this trial, I'm sure it won't be my last, And my gratitude to others love keeps me going.
1 comment:
We love you Leeann. If any of us could take a little bit of this away for you, we would. You are amazing.
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