I have been going everyday up to McKay Dee lab/infusion therapy to have my blood drawn to check mostly levels for my platelets and my WBC. Then most days I go back to McKay Dee to receive a unit of platelets. There have been a day here and there that my levels have been good enough to skip a day.
Now there is a problem regarding the low platelets. I should be producing them on my own and my level should be much higher. So Friday, the 30th I had to have a bone marrow biopsy, my 4th, to see if they can figure out why I'm not producing them yet. We have a Dr. appt. next Friday for the results. But a great event happens tomorrow, I get to skip a day for blood draw, that hasn't happened sense I came home. I'm so happy. I get to sleep in!!!!!
I'm still tired. some days are better than others. I still have the crappy nausea, worst in the morning, so I'm doing the pregnancy trick of a cracker in the morning and then a nausea pill. I do get frustrated about still being so tired and exhausted so easily, and just not feeling good, Still wearing a mask everywhere I go and today was the second time I've gone into a store. I'm picky about where I will go, needs to small with not a lot of people.
My PA said I need to add a week to my "sitting" arrangement because of the low platelets, low WBC and I still have a central IV line. So all in all I'm not quit where I should be, but once they figure out why, they will fix it, or so they say, but that's my prayer.