But about 5 days later Matt and Jenn were told she had, what was called congenital Hypothyroidism. So it's just that, a low thyroid level. I didn't even know they checked for that, but after much research, done by the whole family, one thing I found out is that it's a test that's been done, as part of the new born profile, for 20 years.
On Friday the 20th Matt called me and said the wrong blood had been drawn and now they were being sent to the McKay Hospital lab to draw the correct blood sample. They were frustrated and scared as was I. So before I went for my Chemo I looked up Primary Children's Endocrinology dept, got a general number, dialed it and got the nicest young man on the phone. He listened to me explain our situation and calmly but what honestly seemed firmly, told me to have a referral faxed to them TODAY, and gave me the number and told me that today or tomorrow morning their on-call Dr. would look at all the results. He said the baby would get an immediate appt. with them and that things would be taken care of. So I called Matt with the information and he started working on getting the referral sent down, which happened quickly. Then with-in a couple of hours of the lab being drawn, the Dr. On-Call called Margot's on-call Dr. and gave them the order for what medication and dosage she needed and what pharmacy it was at.
Our Father in Heaven knows each and everyone of us, he knows our name, he knows our needs and our situations as unique as we may think we are, he know them, feels our frustration and knows what we need. We may not think he does, but he does. One thing I've learned from all this is he is listening, no matter how quite our prayer might be. I've been told now for 6 months, "you are in my prayers or I've put your name in the temple roll, or I'm thinking about you", I've decided it never hurts to have others prying for us too, right? But we have to be listening and with all the noise around us it's HARD!
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